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Our Impact: Evaluation of the TeamUp for Dementia Research Service

Commissioned by The Alzheimer Society of Ireland and undertaken by L. O’Mahony, S. Fox, S. Timmons, and E. O’Shea at the Centre for Gerontology and Rehabilitation, University College Cork, the independent evaluation explored the experiences of members, researchers and stakeholders.

It provides valuable insights into the impact of the TUDR service and highlights the important role it plays in connecting people affected by dementia with research opportunities across Ireland.

Using a mixed-methods approach, the evaluation gathered feedback from a wide range of stakeholders, including people living with dementia, family carers, researchers, academics, ASI staff and management, and health and advocacy professionals.

The findings are extremely positive, showing that TUDR provides a meaningful and empowering way for people affected by dementia to contribute to research, while also supporting researchers to recruit participants efficiently and ethically. The evaluation also recognises TUDR’s unique role within Ireland's dementia research landscape and identifies exciting opportunities to expand the service through increased awareness, investment and continued innovation.

 

Key Takeaways

Research participation matters,
 giving people affected by dementia the opportunity to contribute, learn and make a meaningful difference.

TUDR fills an important national role as it provides a trusted pathway of connection; it supports researchers to recruit participants efficiently and offers people affected by dementia research opportunities in a streamlined and person-centred way.

The service is ready to grow with the evaluation identifying opportunities to expand awareness, strengthen digital systems and increase capacity while preserving the important aspect of personalised support that members value as a key element of the service

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