In This Section
- PPI Case Studies
- PPI Resources
- Introduction to PPI
- Difference between PPI and qualitative research
- Involving children and young people in research
- PPI and doctoral research
- PPI in systematic reviews
- PPI in qualitative analysis
- Reporting PPI
- PPI in funding applications
- Budgeting for PPI
- PPI and lab-based research
- Evaluating PPI
- Events and Seminars
- Previous Summer Students
- News and Events
- About Us
- PPI Seed Funding Scheme 2023
- PPI Shared Learning Group for PhD Researchers
- PPI Ignite Network@ UCC Mailing List
- Digital Badge
New Resources for EDI in PPI and Measuring Impact of PPI
PPI Ignite @ UCC is delighted to share two new resources that support more meaningful, inclusive and impactful PPI in research.
1. A Friendly Guide to Equality, Diversity & Inclusion (EDI) in PPI
Developed by Health Research Charities Ireland (HRCI) and the Rare Disease Clinical Trial Network Ireland (Rare Disease CTN), this practical guide focuses on turning the principles of equality, diversity and inclusion into real-world action.
Inspired by the rare disease community, where people living with rare conditions, their families and charities have long advocated for more inclusive approaches, the guide moves beyond theory to offer clear, actionable steps to make PPI more welcoming and enjoyable for everyone involved.
While rooted in the experiences of the rare disease community, the learning extends far beyond it. The guide is relevant to anyone involved in research, including patients, members of the public, researchers, charities, PPI leaders, funders and healthcare professionals. Inside, you’ll find straightforward explanations of what EDI means, why it matters, and practical ideas you can apply to strengthen inclusion in your own work.
2. PPI Impact Framework
We are also pleased to highlight the PPI Impact Framework, developed by PPI Ignite @ Trinity College Dublin. This framework provides researchers, PPI contributors and other stakeholders with a structured model to plan for and capture the impact of PPI throughout a research project.
The framework can be used at three key stages:
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At project development, to map out impact goals and create a roadmap
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At mid-review, to assess progress and identify what remains to be done
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At project completion, to capture achievements, reflect on learning and plan next steps
The report outlines how the framework was developed, situates it within current discussions on impact assessment and PPI, and provides clear guidance on how to use the final model in practice.
Read more on our Evaluating PPI resource page!