News and Events
Launch of National PPI Ignite Network
Minister of State for Disability Anne Rabbitte T.D. has officially launched the PPI Ignite Network, a new national collaborative initiative putting patients at the centre of decision-making in research.
The launch event which took place on zoom on the 2nd of November, 2021 heard from a wide variety of speakers on the meaning and importance of PPI and the new National PPI Ignite Network. The network has programme offices at seven universities across Ireland, a network of local, national and international partners and an expanding group of PPI contributors.
“'Nothing about us, without us’ resonates strongly with me and I particularly welcome the emphasis across the PPI Ignite Network on including historically marginalised groups in co-designing research. Involving people who have not had a voice previously can help shape a different and healthier future for so many people in the coming decades. The PPI Ignite Network really is an investment in future health for all in this country.”
The focus of the PPI Ignite Network is to provide leadership in PPI in research and to provide increased opportunities for the public, patients and carers to be at the centre of research decision-making, working with researchers to decide what issues are important to prioritise and how best to carry out research.
Professor Seán Dinneen, Consultant Endocrinologist with the Saolta Healthcare Group, is the national lead for the PPI Ignite Network. He said: “The PPI Ignite Network will drive excellence and inspire innovation, by embedding a culture of meaningful involvement of the public and patients in research. “We are excited to drive PPI as an integral part of the research culture, to help researchers develop the required skills and knowledge, to broaden the number and diversity of active PPI contributors, and to see genuine and sustained partnerships develop between research teams and community organisations and charities”
The PPI Ignite Network will have a strong focus on education and training, providing supports to researchers and PPI contributors, built around an online hub of case studies, information and resources. A PPI opportunities online portal will go live later this year to help researchers and members of the public who are interested in getting involved to connect with each other.
Dr Anne Cody, Head of Investigator-Led Grants, Research Careers and Enablers at Health Research Board, said: “For over five years we have been championing PPI in research, and our work is clearly illustrating that people’s insights and life experience can inform research in ways researchers operating in isolation can’t. The PPI Ignite Network is bringing together key stakeholders committed to embedding involvement at the core of Irish research, a collaboration capable of facilitating significant positive change.”
The launch event was recorded and is available to view below.