Abstract

This study explored the care experiences of parents whose pregnancy was diagnosed with a fatal fetal anomaly following the legalisation of termination of pregnancy in 2019 in Ireland. We interviewed ten parents, six women and four of their male partners, including those that terminated and continued the pregnancy. We identified three main themes from the interview data: ‘Attachment and coping’ ‘There’s no place for you in the pregnancy world’, and ‘Consistency of quality care’. Parents shared the different approaches and level of attachment to their baby that supported their coping. Regardless of the level of attachment, many parents benefited from the acts of remembrance. Parents expressed how they no longer felt they belonged in the ‘pregnancy world’ and described a need for healthcare professionals to recognise their loss and create a safe and supportive environment in which they could share their grief. Despite this, parents accounts highlighted variations and inconsistencies in care and service provision. Our study highlights parents’ need for consistent, well communicated, and comprehensive care, which encourages an individualised perinatal palliative care approach to meet parental needs.