Experience of women on the Irish National Gestational Trophoblastic Disease Registry

There is a knowledge gap in molar pregnancy amongst healthcare professionals which should be factored into future medical and nursing curricula.

Caroline Joyce, Keelin O'Donoghue
Journal Name
European Journal of Obstetrics, Gynecology, and Reproductive Biology (EJOG)
Journal Article
Awareness / Knowledge, Experience, Molar pregnancy / Gestational Trophoblastic Disease
Biomarkers for Gestational Trophoblastic Disease
Full Citation
Joyce CM, Coulter J, Kenneally C, McCarthy TV, O'Donoghue K. Experience of women on the Irish National Gestational Trophoblastic Disease Registry. European Journal of Obstetrics and Gynecology and Reproductive Biology. 2022;272:206-212.
Link to Publication


Gestational Trophoblastic Disease (GTD) is a pregnancy related disorder that may present as a molar pregnancy or more rarely as malignant disease. A molar pregnancy will not result in a livebirth. Following removal of the molar tissue, women have follow-up monitoring of the pregnancy hormone, human chorionic gonadotrophin (hCG) until levels return to normal. In this study we wished to establish a baseline for GTD services in Ireland by performing a survey of all women registered with the National GTD centre. This was the first time that Irish women with molar pregnancy were consulted for their views. Our postal survey of over 500 women achieved a good response with a 43% return rate. Some of the valuable feedback returned in the survey included: the stress of attending an early pregnancy clinic for hCG monitoring after pregnancy loss and the gap in knowledge amongst healthcare professionals about molar pregnancy. The top priority for these women was the return of a speedy hCG result. They also voiced a need for psychological support and bereavement counselling following a molar pregnancy and expressed a desire for a social media forum or self-help group.

Pregnancy Loss Research Group

Pregnancy Loss Research Group, Department of Obstetrics & Gynaecology, University College Cork, Fifth Floor, Cork University Maternity Hospital, Wilton, Cork, T12 YE02, Ireland,