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Patient-to-Patient tips on disease management
Our first IBD Insights: Living with the Disease focuses on managing inflammatory bowel disease (IBD) from a patient’s perspective. Our Patient and Public Involvement (PPI) panel members—each with diverse experiences and backgrounds—share their personal strategies for effective disease management, diet, and lifestyle adjustments.
| Be an Active Participant in Your Healthcare |
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| Medication Adherence and Awareness |
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| 1. What type is it? (e.g., NSAID, 5-ASA, biologic, steroid, etc.) |
| 2. How is it administered? (Oral, IV, etc.) |
| 3. What dosage are you on? |
| 4. How often do you take it? |
| 5. How does it work? |
| 6. Should it be taken before, after, or with food? |
| 7. Are there any potential side effects? |
| 8. What alternative treatments are available? |
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Stay Connected with Your Healthcare Team
- Identify your assigned nurse practitioner (if applicable) and establish a good relationship with them—they can be an invaluable resource, especially during flare-ups.
- Understand the symptoms of IBD, as they can vary widely from person to person.
- If you develop new or unusual symptoms, contact your healthcare team promptly—they may indicate an impending flare-up.
Prioritise Your Overall Health and Well-being
- Maintain a healthy and active lifestyle to support your body’s resilience.
- Monitor your diet and identify foods that trigger or alleviate symptoms.
- Get adequate rest and manage stress, as both can impact your symptoms.
By taking an informed and proactive approach to managing IBD, you can gain greater control over your condition and improve your quality of life. Remember, you are not alone—your healthcare team and fellow patients are valuable sources of support and guidance.
