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Methodology Monday June Roundup
The June #MethodologyMonday posts focus on the role of intersectionality, more specifically, the overlap of multiple sociodemographic identities associated with the under-served populations.
In this systematic review, it is shown that those with intersectional under-served identities tend to have poorer health, but that it is not so simple to elucidate the link and that the context can play a key role.
Izzidien and colleagues explain the iterative design they used to improve the recruitment process of different underserved groups through the identification of key barriers for these different groups. They share recommendations for enhancing recruitment and representation in future children’s social care research trials such as building system level capacity, embedding inclusivity into the research design, understanding inclusivity, coproduction, and community engagement.
The Commentary by Law and Chatfield examines the ethical implications of undue burdens upon participants, with an emphasis on those that are linked to excessive data collection, and proposes measures to help minimise and mitigate these burdens. Beyond the moral imperative to minimise and mitigate all participation burden, the crux of the issue is reversing the current trend of increasing data collection through deliberate trial design choices favouring proportionate data collections and patient relevant endpoints, all while minimising logistical requirements and ensuring solid science.