Patient and public engagement in research and health system decision making: A systematic review of evaluation tools.

Available: https://onlinelibrary.wiley.com/doi/abs/10.1111/hex.12804

Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations. 2012;

Available: https://pubmed.ncbi.nlm.nih.gov/22809132/

Public Involvement Impact Assessment Framework

Available: https://piiaf.org.uk/

Evaluating PPI

Looking to evaluate whether your PPI has made a difference? Explore the range of practical frameworks, evaluation tools and key literature below to help you assess and strengthen the impact of your involvement activities. From step-by-step planning models to systematic reviews of evaluation approaches, these materials can support you at different stages of your project. Take some time to read through the options and identify the tools and guidance that best fit your research design, context and impact goals.

PPI Impact Framework

The PPI Impact Framework provides PPI contributors, researchers and other stakeholders a model that can be used to plan for and capture the impact of a research project that includes PPI contributors and contributions. The framework can be used at three different stages in a research project:

• At the development stage, to set out a roadmap for impact goals
• At a mid-review stage to determine what has been done to date and what is left to be done
• At the end of the project, when the team is capturing their accomplishments, reflecting on learnings and determining next steps

The PPI Impact Framework Report describes how the framework was developed, positions this framework in the context of the current discourses around impact assessment frameworks and PPI, and presents the final model and how to use it.

You can download a handy 2-page summary flier of the model from the link below, to share with your team as you start to plan your impact.

Download file

A systematic review of evaluation tools

This systematic review, published in Health Expectations, examines how patient and public engagement in research and health system decision making is being evaluated. Reviewing 27 tools developed between 1980 and 2016, the authors highlight a growing range of practical instruments designed to improve engagement activities, while also identifying important gaps in scientific rigour, impact measurement, and patient involvement in tool design and reporting. The paper offers a valuable overview for researchers, practitioners and patient partners seeking to choose or strengthen evaluation approaches.

Available: https://onlinelibrary.wiley.com/doi/abs/10.1111/hex.12804

Evaluating PPI Training: A Resource for Facilitators

Download Resource

This is a practical set of materials to support facilitators of PPI training activities to evaluate their training sessions and events, with the ultimate goal of improving PPI training provision across Ireland. This resource includes:

• Question Bank: This question bank of potential survey questions can be used and adapted as part of your plan to evaluate the delivery and impact of your PPI training activity.
• Facilitators Guide and Checklist: The purpose of this guide is to provide facilitators of PPI-related training and events with some simple guidance and tips to effectively administer evaluation surveys to participants of their training sessions.
• Draft PowerPoint slide: This slide can be edited and included in PPI training-related PowerPoint presentations, encouraging your participants to complete the survey
• Survey Templates which can be copied and adapted to suit the requirements of your evaluation and audience: Microsoft Forms template ,Microsoft Word template

PPI Ignite Network Framework for Quality Improvement in PPI

Download Framework

This Framework for Quality Improvement in Public and Patient Involvement (PPI) inhealth and social care research has been developed by the PPI Ignite  Office in Trinity College Dublin for the national PPI Ignite Network. It has been created ‘to build capacity for high-quality PPI’, a stated aim of the Network. It strives for a shared understanding of what quality means in relation to PPI activity in Ireland by first identifying an agreed set of values and principles that underly high quality PPI and then for PPI partners and researchers to define how those values and principles might look in practice. Developed by PPI Ignite @ Trinity College Dublin.

Mapping the impact of patient and public involvement on health and social care research: a systematic review

This systematic review, published in Health Expectations, maps the evidence on how PPI shapes health and social care research. Drawing on 66 international studies, Jo Brett and colleagues show that involving patients and the public can strengthen research at every stage, from setting priorities and refining study design to improving recruitment, data interpretation, dissemination and implementation. The review also highlights practical and ethical challenges, including power dynamics, time and cost pressures, and tensions between scientific and user perspectives.

The Public Involvement Impact Assessment Framework

The Public Involvement Impact Assessment Framework (PiiAF) encourages teams to reflect on values, approaches, study design and practical considerations that shape involvement, before developing a tailored impact assessment plan. Structured around four phases, from clarifying aims to designing evaluation questions and methods, PiiAF helps researchers think systematically about both intended and unintended impacts of PI. It is particularly useful at the proposal development stage and for teams seeking a structured, theory-informed approach to evaluating public involvement.