Aims -Scaling Up
Scaling Up The Family Carer Decision Support Intervention: A Transnational Effectiveness-Implementation Evaluation.
Drs Nicola Cornally and Irene Hartigan are country leads in an international consortium(six countries), led by Professor Kevin Brazil, Queens University Belfast. This project will refine and test the up scaling of the Family Carer Decision Support (FCDS) Intervention. The FCDS intervention has been designed to inform family carers about end-of-life care options available to a person living with advanced dementia. A multiple case study design will be used where a care home will be the unit of analysis or ‘case’. Twelve care homes will be enrolled that provide care for residents living with dementia in six countries, two care homes per country: United Kingdom (Belfast); Republic of Ireland (Cork County); Netherlands (Leiden); Canada (Hamilton, Montreal); Czech Republic (Prague); Italy (Turin).
Further to the implementation of the FCDS in two sites in Ireland the team at UCC in collaboration with All Ireland Institute of Hospice and Palliative Care (AIIHPC) are leading on the Knowledge Exchange and Communication work package. At the core of this work package is to support and develop young researchers in dementia and palliative care research. Seven young researchers will be drawn from across the seven participating countries. They will be given the opportunity to work together and with international experts in care planning for end-of-life and dementia palliative care to support learning of transnational practices and explore solutions to challenges in their setting. The School of Nursing and Midwifery, UCC received the portion of the EU funding from the Health Research Board and the project is due to commence in April 2019.
The Team: Dr Nicola Cornally (partner lead), Dr Irene Hartigan (co-lead), Dr Serena Fitzgerald (co-investigator), Dr. Rónán O’Caoimh (co-investigator), Dr Suzanne Timmons (co-investigator), Dr Catherine Buckley (co-investigator), Dr Siobhan Fox (co-investigator), Dr Tony Foley (co-investigator), Dr Catherine Sweeney (co-investigator). PhD student and Post-Doctoral Researcher to be appointed.
Consortium Partners: United Kingdom, Kevin Brazil, Queen’s University Belfast (Consortium lead), Canada, Sharon Kaasalainen, McMaster University Netherlands, Jenny Van Der Steen, Leiden University Medical Centre, Czech Republic, Martin Loucka, Center For Palliative Care.
Collaborators: United Kingdom, Karen Harrison-Dening, Dementia UK; Italy, Paola Di Gulio, University Of Turin; Netherlands, Minke Kooistra, Alzheimer Nederland (Dutch Alzheimer’s Society); Canada, Mary Schulz, Alzheimer Society Of Canada; Canada, Sharon Baxter, Canadian Hospice Palliative Care Association; Republic Of Ireland, Karen Charnley, All Ireland Institute Of Hospice And Palliative Care; Czech Republic, Iva Holmerova, Charles University & Alzheimer Europe.