Living Well with Chronic Conditions and Disability

Impact

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Aims & Objectives

Aim:

The aim of this research programme is to conduct national and international collaborative research that will contribute to new knowledge toward promoting and maintaining physical, emotional, and social health and wellbeing among individuals and families living with chronic conditions and/or disability.  

Specific Objectives:

  1. helping children, adolescents and adults manage the complexities of chronic illness management in their day to day lives.

  2. developing services that enhance health care provision in the management of chronic illnesses.

  3. providing a forum for children, adolescents and adults with chronic illnesses (including their families) to articulate their views and to ‘voice’ how best their health care needs can be met. Within this programme, research specific to risk and preventative aspects of chronic illness will also be conducted.

Projects

Studies are currently being conducted across a range of chronic illnesses including;

  • asthma

  • cystic fibrosis

  • diabetes

  • childhood leukaemia

  • inflammatory bowel disease

  • colo-rectal cancer

  • COPD and cardiac failure

Specific areas of interest within this theme are:

  • self-and family management

  • self-monitoring

  • symptom experiences and management

  • palliative care

  • quality of life experiences

Title

 

Self-Management Education for Cystic Fibrosis.

Research Team

PI: - Professor Eileen Savage (School of Nursing & Midwifery, University College Cork, UCC); 
Members: Dr. Paul Beirne (Department of Epidemiology & Public Health, University College Cork); Dr. Muireann Ni Chronin (Paediatric Services, Cork University Hospital); Dr. Alistair Duff (Department of Clinical & Health Psychology, University College Cork); Dr. Tony Fitzgerald (Department of Epidemiology & Public Health, University College Cork); Ms. Dawn Farrell (School of Nursing & Midwifery, University College Cork).

Funding

Health Research Board, Ireland - €106,520.

People

Research Leader:

Professor Eileen Savage:- e.savage@ucc.ie

Members:

School of Nursing and Midwifery School

Scoil an Altranais agus an Chnáimhseachais

Brookfield Health Sciences Complex College Road Cork, Ireland , T12 AK54

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