Data Access Committee

NPEC Data Access Committee

The National Perinatal Epidemiology Centre (NPEC) encourages the use of its data for research purposes. In supplying data, the NPEC must comply with its obligations of confidentiality under the Data Protection Acts, 1988 and 2000. The use of the data by the applicant must also be consistent with the Data Protection Acts.

It is the NPEC's policy that all requests for data for research purposes be considered by a committee, termed the Data Access Committee. All requests will be handled equitably, through the same process, whether the request comes from the NPEC internally or from an external source. It is the NPEC’s policy to have transparency in the decision-making process; in this regard, details of projects for which access has been granted will be published on the NPEC website. Requests will be considered only from individuals affiliated with an education, healthcare or other research institution. A meeting or consultation with the requester may be required if there are any questions or reservations about the release of data.

The NPEC Data Access Committee will be responsible for evaluating all requests for data. The Committee is comprised of a sub-group of the NPEC Governance Committee (formerly NPEC National Advisory Group) and represents all relevant parties, including clinical and non-clinical researchers in obstetrics, paediatrics, midwifery and other relevant disciplines/professions. It advises the Director on matters concerning data access by researchers.

9 December 2014

Approved Data Request

Project: Request for maternal/fetal and neonatal data relating to intrapartum deaths, 2011-2014, all maternal ages and all HSE regions.

Approved by NPEC Data Access Sub-group on 15 September 2015


Project: An analysis of Severe Maternal Morbidity by Robson TGCS (Ten Group Classification System) Group, 2014-2015

Approved by NPEC Data Access Sub-group on August 2017


Project: An analysis of perinatal deaths in which the main cause of death is congenital anomaly, 2008-2016.

Approved by NPEC Data Access Sub-group on August 2017


Project: A comparative analysis of Robson TGCS groups between the Hessen region in Germany and Ireland in 2015

Approved by NPEC Data Access Sub-group on August 2017


Project: Request for data on all infants born in Ireland with a diagnosis of congenital diaphragmatic hernia (CDH), 2013-2017.

Approved by NPEC Data Access Sub-group on 4 April 2018


Project: Access to Very Low Birth Weight Infants data (i.e. Vermont Oxford Network data) with Congenital Heart Disease, 2014-2016.

Approved by NICORE/NPEC Data Access Committee on 3 July 2018

National Perinatal Epidemiology Centre

Dept. of Obstetrics and Gynaecology, 5th Floor, Cork University Maternity Hospital, Wilton, Cork