Centering and Embedding Family Carers in the Co-Production of Carer Research, Supports and Policy
Underpinned by an engaged research approach, CARERENGAGE has an overall aim to coproduce in-depth, practically-oriented knowledge and evidence-based research impacting family carers in Ireland. Specifically, this will involve Institute of Social Science in the 21st Century UCC (ISS21) and Care Alliance Ireland (CAI) facilitating and delivering three national workshops addressing three key research and policy areas identified by CAI, in consultation with its 85 CVO members.
This aim is supported by the following action-specific objectives:
1: Develop a CVO-academic-policy-citizen-carer-service provider knowledge network to support family carers’ capacity to make informed decisions and achieve policy goals
2 Co-facilitate three national workshops to encourage knowledge exchange and coproduction dialogue between network members to bridge the gap between research, policy, practice and family carer requirements.
3 Co-develop, communicate and translate policy, academic, CVO provider, recommendations to maximise the value and impact of family carer research.
Co-facilitated by ISS21 and CAI, the project plan prioritises the delivery of three roundtables, briefing and position papers on priority social policy issues impacting carer well-being in Ireland. The roundtables are as follows:
- Patient & Public Involvement (PPI) in Research with a Focus on Family Caring. 13th October 2020
- Evaluating the National Carers Strategy - Future Directions, 23rd March 2021
Susan Scally, Principal Officer, Social Care Performance & Integration, Department of Health
Emily Holzhausen OBE, Director of Policy & Public Affairs, Carers UK
Clare Duffy, Policy & Public Affairs Manager, Family Carers Ireland
- Family Carer Experiences of Inclusion and Exclusion, 22 September 2021, 2-3pm (via zoom).
Family carers have varied experiences of both inclusion and exclusion in research on caring. In this session Helena McQuaid (family carer & chair of the Dementia Carers Campaign Network) and Fiona Masterson (former family carer & member of the Family Carers Ireland PPI Panel) talked about their involvement in the research process.
Zoe Hughes (Care Alliance Ireland) opened the event with a summary of the work from the previous two events and reflections on what had been learned. Concluding comments on the next steps were provided by Dr Carol Kelleher, PI of the CARERENGAGE Project and co-convenor of the ISS21 CARE21 Research Cluster. For further details on this event please click here
Pierce, M., Hughes, Z., O’ Sullivan, L. & Kelleher, C. (2021) A Review of The National Carers’ Strategy (2012): How relevant are the actions in 2021 and for the future? Dublin: Care Alliance Ireland and Institute of Social Science in the 21st Century, University College Cork. Available here
Project Funding & Duration
Funded by the Irish Research Council, New Foundations Scheme, from July 2020 – October 2021
Dr Carol Kelleher, ISS21, Email firstname.lastname@example.org
Zoe Hughes, CAI, Email email@example.com
Liam O' Sullivan, CAI Email firstname.lastname@example.org