Public Patient Involvement (PPI) in Family Carer Research

13 Oct 2020

As part of an ongoing PPI collaboration, Care Alliance Ireland and ISS21  launched their joint initiative entitled CARERENGAGE: Centering and Embedding Family Carers in the Co-Production of Carer Research, Supports and Policyfunded by the Irish Research Council New Foundations Programme, on 13 October 2020.

The launch involved ISS21 and CAI co-facilitating and co-delivering an online roundtables on Public Patient Involvement (PPI) in Family Carer Research, which was attended by family carers, academics and researchers,  health and social care providers and CVOs. The roundtable featured three presentations, followed by a lively and engaging panel and group discussions between family carers, researchers, CVOs and health and social care providers who attended on how to implement best practice PPI with regard to family carer research. 

Dr Jon Salsberg (University of Limerick) spoke about best practice PPI in health and social care (click here to access recording). Dr. Nikki Dunne, Family Carers Ireland & Jo Bergin, Family Carer, spoke about a recent PPI initiative and lessons learnt between UCD and Family Carers Ireland (click here). Aisling Harmon (PPI participant expert and family carer) provided a response from a family carer’s perspective.

For further information on the CARERENGAGE project or to receive information about the upcoming roundtables, please see CARERENGAGE or contact or


Institute for Social Science in the 21st Century (ISS21)

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