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Patient and Public Involvement (PPI)
Our team collaborated with experts with lived experiences and Third-Party Partner representatives through Public and Patient Involvement (PPI) consultations. These sessions explored the challenges, barriers, and insights related to communication access across four key groups:
1. People living with stroke acquired communication impairments – Individuals navigating the challenges of communication difficulties acquired as a result of stroke and including impairments such as aphasia, dysarthria or apraxia of speech
2. People living with dementia – Those experiencing changes in memory and language that impact their ability to communicate.
3. Members of the Deaf community – A linguistic and cultural minority whose primary language is Irish Sign Language (ISL), advocating for communication rights and cultural and linguistic recognition.
4. Members of the Traveller community – A recognised ethnic minority group whose unique cultural identity intersects with communication challenges and access.
The Irish Heart Foundation is Ireland’s national charity dedicated to preventing heart disease and stroke, supporting those affected, and promoting heart-healthy lifestyles.Through advocacy, education, and research, the foundation works to reduce the prevalence of cardiovascular conditions and improve quality of life for individuals and families across Ireland.
The Stroke Association of Northern Ireland is a leading charity supporting people
affected by stroke. They provide resources, rehabilitation services, and emotional
support to help stroke survivors and their families rebuild their lives. The organisation
also raises awareness and advocates for stroke prevention and better care.
The Alzheimer Society of Ireland is the country’s leading dementia-specific charity,
supporting people living with dementia and their carers. The society provides
essential services such as day care, respite care, and education, while advocating
for a dementia-inclusive society through awareness and policy initiatives.
Alzheimer’s Society UK in Northern Ireland provides vital support, advocacy, and
research funding for people affected by dementia. They offer services such as
Dementia Support, a helpline, and local community groups, helping individuals and
their families navigate life with Alzheimer’s and other dementias. They also work
closely with healthcare professionals, policymakers, and researchers to improve
dementia care and awareness. Through initiatives like Dementia Friendly
Communities and campaigning for better services, the charity aims to ensure no one
faces dementia alone in Northern Ireland.
The Irish Deaf Society is Ireland’s national representative organisation for the Deaf
community. It advocates for equality, access, and the recognition of Irish Sign
Language (ISL) as an official language. The society also provides education,
resources, and support to empower Deaf individuals and promote their linguistic and
cultural identity.
The Galway Traveller Movement is a community-based organisation dedicated to
promoting equality, human rights, and the empowerment of the Traveller community.
Through advocacy, education, and grassroots initiatives, the organisation works to
combat discrimination, improve living conditions, and celebrate Traveller culture and
identity.
