Chronic illness management

Research Leader:

Professor Eileen Savage:- e.savage@ucc.ie

Members:

Aim:

The aim of this research programme is to conduct national and international collaborative research that will contribute to new knowledge toward

Specific Objectives:

  1. helping children, adolescents and adults manage the complexities of chronic illness management in their day to day lives.

  2. developing services that enhance health care provision in the management of chronic illnesses.

  3. providing a forum for children, adolescents and adults with chronic illnesses (including their families) to articulate their views and to ‘voice’ how best their health care needs can be met. Within this programme, research specific to risk and preventative aspects of chronic illness will also be conducted.

Studies are currently being conducted across a range of chronic illnesses including;

  • asthma

  • cystic fibrosis

  • diabetes

  • childhood leukaemia

  • inflammatory bowel disease

  • colo-rectal cancer

  • COPD and cardiac failure

Specific areas of interest within this theme are:

  • self-and family management

  • self-monitoring

  • symptom experiences and management

  • palliative care

  • quality of life experiences

 

Title

 

Symptom Burden in Inflammatory Bowel Disease: Patient Experiences and Self-Management.

 Student Dawn Farrell

Research Team

Professor Eileen Savage & Professor Geraldine McCarthy.

Funding

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Project Period

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Project Details

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Title

 

Symptom Control in Young People with Asthma

 Student Mary Hughes

Research Team

Professor Eileen Savage & Dr. Tom Andrews

Funding

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Project Period

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Project Details

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Title

 

Management Strategies for Bowel Symptoms following Surgery for Rectal Cancer

 Student Margaret Landers

Research Team

Professor Eileen Savage & Professor Geraldine 

Funding

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Project Period

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Project Details

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Title

 

Self-Management Education for Cystic Fibrosis.

Research Team

PI: - Professor Eileen Savage (School of Nursing & Midwifery, University College Cork, UCC); 
Members: Dr. Paul Beirne (Department of Epidemiology & Public Health, University College Cork); Dr. Muireann Ni Chronin (Paediatric Services, Cork University Hospital); Dr. Alistair Duff (Department of Clinical & Health Psychology, University College Cork); Dr. Tony Fitzgerald (Department of Epidemiology & Public Health, University College Cork); Ms. Dawn Farrell (School of Nursing & Midwifery, University College Cork).

Funding

Health Research Board, Ireland - €106,520.

Project Period

2008 - ongoing

Project Details

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PUBLICATIONS (Select papers within the past 5 years)

(Note: Papers relevant to this programme only are included here. Additional papers authored by members of the Programme can be retrieved through their respective website).

2010

  • Buckley, A. & Savage, E. (2010). ‘Preoperative information needs of children undergoing tonsillectomy’. Journal of Clinical Nursing, 19 (19-20):2079-2085.

  • Farrell, D. & Savage E. (2010). ‘Symptom burden in inflammatory bowel disease: Rethinking conceptual and theoretical perspectives’. International Journal of Nursing Practice, 16 (5):437-442.

  • McManus, V. & Savage, E. (2010). ‘Cultural perspectives on interventions for managing diabetes and asthma in children and adolescents from ethnic minority groups’. Child Care, Health and Development, 36 (5):612-622.

  • Savage, E., Farrell, D., McManus, V. & Grey, M. (2010). ‘The science of intervention development for type 1 diabetes in childhood: systematic review’. Journal of Advanced Nursing EPub ahead of print. DOI: 10.1111/j.1365-2648.2010.05423.x.

2009

  • O’Sullivan, E. & Savage, E. (2009). Erectile dysfunction and CHD: related risk factors and implications for nursing practice. British Journal of Cardiac Nursing. 4(4) 170-176.

  • Power, R., McManus, V. & Fourie, R. Hardship, dedication and investment: An exploration of Irish Mothers commitment to communicating with their children with cerebral palsy. Journal of Psychiatric and Mental Health Nursing, 2009, 16, 531-538.

  • Savage, E., Berine, P., Ni Chronin, M., Duff, A. & Fitzgerald, T. (2009). Self-management education for cystic fibrosis (Protocol). Cochrane Database of Systematic Reviews. Issue 1. Art. No.: CD007641. DOI: 10.1002/14651858.CD007641.

  • Savage, E., O’Riordan, A. & Hughes, M. (2009). Quality of life in children with acute lymphoblast leukaemia: a systematic review. European Journal of Oncology Nursing, 13(1): 36-48.

  • Savage, E. & McCarron, S. (2009). Research access to adolescents and young adults. Applied Nursing Research, 22(1): 63-67.

2008

  • Hayes, C. & Savage, E. (2008). Fathers’ perspectives on the emotional impact of caring for their children with cystic fibrosis. Journal of Paediatric Nursing, 23(4): 250-256.

  • McManus, V. (2008). Understanding participation in activities and quality of life in children with cerebral palsy. Journal of Children’s and Young People’s Nursing, 2(1): 21-27.

  • McManus, V. & Savage, E. (2008). The link between obesity and diabetes mellitus Type 2 for Irish children. Skills 4 Nurses Issue 2, 34-36.

  • McManus, V., Paul Corcoran & Ivan J. Perry. Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatrics 2008, 8:50 doi: 10.1186/1471-2431-8-50.

  • O’Sullivan, M. & Savage, E. (2008). Nursing contributions to mobilizing older adults following total hip replacement in Ireland. Journal of Orthopaedic Nursing. 12(3): 181-186.

  • Savage, E. (2008). ‘It’s my choice too: Children’s decision making rights when undergoing surgery’. Journal of Anaesthetic & Recovery Nursing, 4 (3):8-10.

2007

  • Hayes, C. (2007). Information seeking experiences of fathers of children with cystic fibrosis. Journal of Children and Young Peoples’ Health. 1(8): 393-399.

  • Hughes, M. (2007). Shared Care: A Review of the Literature. Journal of Children and Young Peoples’ Health, 1(6), 293-296.

  • Hughes, M. (2007). Parent’s and nurses’ perceptions of family centred care: An Irish Perspective. Journal of Clinical Nursing, 16, 2341-2348.

  • Savage, E. & Callery, P. (2007). Clinic consultations with children and parents on the dietary management of cystic fibrosis. Social Science & Medicine, 64(2):363-74.

  • Savage, E. (2007). The contribution of specialist nurses to the management of cystic fibrosis in Ireland. Journal of Children’s and Young People’s Nursing, 1(4): 180-185.

 

2006

  • Savage, E. (2006). Helping children eat a high fat, high calorie diet for CF. Cystic Fibrosis Worldwide, 8: 6-9.

  • McCarthy, G., Savage, E. & Lehane, E. (2006). Research Priorities for Nursing and Midwifery in Southern Ireland. International Nursing Review, 53 123-128.

2005

  • Savage, E. & Callery, P. (2005). Weight and energy: parents’ and children’s perspectives on managing cystic fibrosis diet. Archives of Diseases in Childhood, 90: 249-252.

  • Savage, E. & Callery, P. (2005). Children’s roles during consultations. Journal of Cystic Fibrosis 4 (Supplement 1): S112.

  • Savage, E. (2005). The contribution of specialist nurses to the management of cystic fibrosis: parents’ and children’s perspectives. Journal of Cystic Fibrosis 4 (Supplement 1): S106.

  • Savage, E. & Callery, P. (2005). Weight and energy: parents’ and children’s perspectives on cystic fibrosis diet. Journal of Cystic Fibrosis Vol. 3 (Supplement 1) S280.

  • Savage, E. (2005). Uncoding medical language to help children with cystic fibrosis. Irish Medical Times, July 23rd edition.

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